Help For Parents Of Autistic Children In India and Pakistan

A program for parents and non-specialist health workers could help autistic children in the developing world.

AsianScientist (Dec. 29, 2015) – A parent-led autism therapy has been developed by clinical researchers in a collaboration between the Universities of Liverpool and Manchester and colleagues for use by non-specialist health workers in south Asia.

The researchers report in Lancet Psychiatry that they successfully tested the program in India and Pakistan, and they hope the partnership will improve treatment for an estimated five million children in the region with the disorder.

Autism is one of the world’s fastest growing developmental health challenges, with up to 70 million people affected, causing a severe effect on the social development of children. In developed countries children are able to receive specialist treatment to improve their interaction with their families, but in many lower income countries, this is not available.

As a result, researchers, funded by the Autism Speaks Global Autism Public Health Initiative, adapted a leading UK therapy method known as PACT which helps parents interact better with their autistic child.

The resulting PASS (parent-mediated intervention for autism spectrum disorder in South Asia) program was taught to non-specialist health workers in Rawalpindi, Pakistan and Goa, India who then worked with parents of the 65 autistic children who were recruited to the trial.

The PASS materials were all presented in the parents’ first language and each period of treatment began with a session on the causes and misconceptions about the condition.

At the end of the 12 week period the children were assessed using recognized methods. The parents were shown to have learned from the intervention and the children were more likely to initiate communication with their parents.

“We’ve shown that these techniques can help children in the UK, but in south Asia, there are factors such as lack of resources, trained staff, language and cultural differences and poor access to medical centres which means that methods need to be adapted,” said Professor Atif Rahman from the University of Liverpool and Professor Jonathan Green from The University of Manchester, the lead authors of the study.

“This study is the first to have adapted a treatment so as to allow it to be delivered by non-specialist health workers in South Asian communities. It has been outstandingly successful in showing that such adaptation is both possible and can produce changes that are equal or even better that we achieved in UK.”

The article can be found at: Rahman et al. (2015) Effectiveness of the Parent-mediated Intervention for Children with Autism Spectrum Disorder in South Asia in India and Pakistan (PASS): a Randomised Controlled Trial.

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Source: University of Liverpool; Photo: Barry Pousman/Flickr/CC.
Disclaimer: This article does not necessarily reflect the views of AsianScientist or its staff.

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